Terry's Fight
the battle to beat
a deadly disease

Page 5

2/22/10 Monday:

     On Friday, 2/19/10, his white blood count (WBC) was at 0.3 up from 0.1 from the day before, good sign and keeping our fingers crossed...Saturday his WBC was at 0.2, still good...Terry is complaining of leg cramps and pain and also is developing a rash, all signs of his new cells taking over...Sunday, WBC is still 0.2...the steroids are taking their toll on the little guy, he's having roid rage and is becoming very emotional, he's still fighting though!!!!

3/8/10 Monday:

Things have been status quo, just waiting for the cells to grow. On Friday, 3/5/10, we had quite a care, Terry's heart rate went up to 260 and all the alarms sounded and the emergency team rushed in....took them a while to get his rate back down...after a couple of hours the cardiologist met with me and told me Terry has SVT, Supraventricular Tachycardia, just a small electrical glitch in his ticker! She said that there is no damage to the heart when this happens and there's no chance of cardiac arrest. What a relief, but how many more things can he endure??? This past week we lost a little precious boy here on 5200...He had MLD, the sister disease to Krabbe. The reality and severity of what all of us here are going through set in even deeper. I try to sleep, for the most part it is very difficult to do so.................

3/14/10 Sunday

   Haven't entered anything in a while, many things going on since my last entry and not good things at all.....Terry's spirit is unbroken and his participation in the activities that they have here on the floor is remarkable...He loves going and all the families here love him because of his humor, smile and laugh...On Friday, 3/5/10, he went into SVT (Supraventricular Tachycardia), a speeded up heart rate due to an electrical glitch in his upper ventricle....scared the living daylights out of him and me!!! He's always watching his monitor now, I don't blame him but there's no chance of cardiac arrest and there's no damage to the heart when this happens....As to his WBC (white blood count) it is not doing as good as they would like, in fact, it's not doing much at all...On Tuesday, 3/16/10, he is scheduled for a bone marrow aspiration (taking a sample of his bone marrow from his hip) to see if the cells are growing at all. If there are 60% or better new cells in his marrow they will wait to let them grow and if not, they will schedule another transplant, meaning another round of chemo!! This kid can't catch a break, I feel so bad and there's nothing that I can do to make this situation better!!! Is this a good time to scream my friggin lungs out now????!!!!

Friday, 3/26/10
  Here we go again!!! First transplant didn't take!!! Chemo starts again this morning at 10..Chemo Saturday and Sunday, then on Monday he gets another transplant...Monday afternoon I get a line put in so they can take my granulocytes (white blood cells that fight bacteria) and give them to Terry to help him fight off bacterial infections..His poor system has been without white cells since the beginning of Feb...The risk gets greater for him to get an infection everyday....They will filter my blood (3-4 hour process) and take out my white and put the rest of my blood back in my body...I will do anything to help keep my son alive!!! This sucks big time!!!!
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DURHAM, N.C. -

Young patients at Duke Hospital, including Terry Hallock III, took a virtual trip to Vancouver for the Olympics with the help of a video game and the Duke Pediatric Blood and Marrow Transplant Family Support program .

"I played Wii for the kid' Olympics," Hallock said.

Director of the Family Support Program Lindsey Kearns said it's about education.

"It's an opportunity to educate the kids about what's going on in Vancouver," Kearns said.

They picked teams.

"Canada Ay," Hallock said.

They suited up, sporting their team's flag, and then headed to the bobsled track. It was best out of three for these gold medal hopefuls.

"I got another gold medal," Hallock said.

But it was more than just about the win. For Nicholas, Terry, Salvatore and little Giovonni it means time away from their hospital beds.

"I think it was fun to do the Olympic games because I play with all my friends and have fun at the same time," patient Nicholas Wilkins said.

Father Mel Sereno who has two kids in the hospital said it brings their family closer.

"Olympic events are a neat thing for the entire family; we like doing things together," Sereno said.

And even though the kids face some serious illnesses, there's two things that parents like Terry Hallock said help get them through.

"The best medicine is music and laughter," Hallock said.

And that's what these Olympic Games have to offer. Along with the bobsledding, they also participated in ice dancing and many other events to make them smile.

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